Founded in 2015, #MEAction is the largest grassroots
organization fighting for recognition, medical education, and
research for the 30 million people with ME (also called Myalgic
Encephalomyelitis/Chronic Fatigue Syndrome or ME/CFS).
Volunteers around the world leverage Unrest, an award-winning documentary
about ME directed by our co-founder Jennifer Brea, as a powerful
message to bring awareness about and hope for those living with
This year, researchers and doctors have started following
patients diagnosed with COVID-19 who are having continuing symptoms
that are similar to ME. We partner with other organizations to
demand research, funding, and recognition for ME, and to support
this emerging community of Covid-19 “long-haulers.” We vigorously
advocate for scientific research, medical education, public
recognition, and social support.
We are looking for our next Executive Director to begin as soon
as possible. You will take the reins from our founding director,
work directly with the Board to establish our strategic plan for
the next three to five years, and ensure the successful
implementation of your plan.
About the Position
Your core work will focus in four areas: strategy, fundraising
and financial management, Board partnership, and people
- In Strategy, you will collaborate with
our staff of seven employees and thousands of volunteers to fulfill
our mission through programming, communications, community
outreach, and capacity building. You will work with the Board to
define how we will play a clear and impactful role in the evolving
Long Covid crisis.
- In the areas of Fundraising and Financial
Management, you will ensure the long-term financial
viability of the organization by developing and implementing a
sustainable and repeatable fundraising strategy, cultivating donor
relationships, creating and operating within a budget, and
providing regular and accurate financial reports to the Board.
- In working with our Board, you will
communicate proactively, positively, and professionally in order to
build trust and support great decision making.
- As you manage people, you will coach the
senior leadership, support all of our staff in their work, and grow
our culture of engagement and positive conflict resolution among
volunteers. You will nurture our external partnerships with other
ME/CFS, Long Covid, and related medical, research, and community
- Most importantly, you will be joining — and adding to — a
friendly, collaborative, supportive, and innovative organizational
You can be located anywhere in the United States; the
organization is currently entirely virtual, and its headquarters
are located in Los Angeles, California.
- We are open to meeting with candidates of many different
profiles. We think you will have:
- A bachelor’s degree or have equivalent, relevant
- High emotional intelligence
- Comfort navigating complex organizations, relationships, and
- A track record of transparent and high-integrity
- Ten or more years’ senior management experience, with at least
five years in a nonprofit leadership position involving direct work
with a Board of Directors
- Experience managing transitions in nonprofits with a track
record of growth
- Experience with grassroots, community-based, or
- Substantial experience with fundraising strategy, donor
cultivation, and/or digital strategy for fundraising
The Fine Print & Next Steps
We offer competitive compensation and benefits as well as
flexibility in location, work hours, and time off.
We are an equal-opportunity employer with a policy of equal
employment opportunity for every person regardless of age, race,
religion, color, disability, marital status, gender, sexual
orientation, national origin, ancestry or citizenship.
If you would like more information about the position, please
email our search consultant, Lydia Musher, at MEAction@TraditionSearchPartners.com.
To apply, please submit the online application by December 15,
2020. We encourage you to apply as soon as possible as applications
will be considered on a rolling basis. Before you apply, please
visit our website at http://meaction.net to learn more
about our organization. Thank you for your interest.