The Batten Group, a premier national executive search firm
specializing in nonprofit, health, and mission-based philanthropy,
has been retained by the Immune Deficiency Foundation to conduct a
national search to identify professionals to lead the organization
as their next Chief Executive Officer. Chief
Executive Officer About
the Immune Deficiency Foundation
Founded in 1980, the
Immune Deficiency Foundation (IDF) improves the diagnosis,
treatment, and quality of life of people affected by primary
immunodeficiency (PI) by fostering a community empowered by
advocacy, education, and research. Primary Immunodeficiencies (PI)
are a group of more than 400 rare, chronic disorders in which part
of the body’s immune system is missing or functions improperly.
There are approximately 250,000 people who are diagnosed with PI in
the U.S., and thousands more go undetected. IDF provides
accurate and timely information for patients and families living
with PI and offers valuable resources to them. IDF:
- Helps the patient and medical community gain a broader
understanding of PI through education and outreach efforts;
- Promotes, participates in, and conducts research that has
helped characterize PI and given patients and physicians
substantially improved treatment options; and
- Addresses patient needs through public policy programs by
focusing on issues such as insurance reimbursement, patient
confidentiality, ensuring the safety and availability of
immunoglobulin therapy, and maintaining and enhancing patient
access to treatment options.
The Chief Executive
Officer (CEO) of IDF provides visionary, strategic leadership in
partnership with the Board of Trustees and has operational
responsibility for management of staff and implementation of
essential foundation programs. In carrying out this duty, the CEO
is responsible for advocating and furthering the mission and goals
of the organization by taking positive steps to assure the
accomplishment of action objectives and by adhering to the
direction of the Board of Trustees. The CEO promotes and fosters
the Foundation’s unique mission and proactively integrates
technology, marketing, research, fundraising, and fiscal and
strategic plans. The CEO cultivates an efficient, productive and
accountable staff organization to assure attainment of objectives
and value-add services to constituents. Through management and
staff leadership, the CEO achieves economical, productive, and
constructive growth of the Foundation. The CEO will be a
confident partner to the Board of Trustees and stakeholder
communities and will play an important role in IDF’s transformation
for its next stage of growth, service and impact.
Position Duties and Responsibilities
- Leads and energizes the Foundation’s operations and staff, to
assure the development and implementation of programs that achieve
IDF’s mission and broader purpose and Board-approved strategic
goals, including the recruitment, retention and engagement of a
diverse stakeholder community.
- Collaborates with the Board and staff to build IDF’s strategic
direction. Builds upon and strengthens the existing strategic plan
with new and innovative solutions.
- Maintains an effective, open and collaborative working
relationship with the Board of Trustees. Works with Chair to focus
Board meetings on topics of highest priority and provides Board
members with appropriate information in a timely fashion. The CEO
will share information necessary for the Board to make informed
decisions on critical issues. The CEO engages Board members
collectively and individually in communicating key challenges,
opportunities, and trends affecting the organization and
facilitates consensus among Board members on key issues.
- Becomes the face of IDF with a diverse constituency;
governmental bodies and agencies; academic and research
communities; and external coalitions, foundations, and
organizations. Initiates and directs adequate communications among
staff and Board of Trustees as necessary for the effective
operations of the Foundation’s programs and services.
- Attracts, retains, motivates and develops IDF’s staff and
fosters a collaborative, innovative culture.
- Seeks the most efficient and effective practices while
adjusting work and initiatives in a prudent and thoughtful
- Leads the organization’s senior management team, inspiring,
energizing and empowering them in their roles. Cultivates
cross-division collaboration and a culture of integrity, respect,
teamwork, innovation, and results.
- Understands the value of pursuing new initiatives to enhance
organizational effectiveness to further the Foundation’s
- Assures the Board’s financial objectives are achieved, and the
appropriate level of financial resources are available to fund
objectives. The CEO works with the finance team to make sound
financial decisions and recommendations based on a thorough
understanding of the organization’s overall financial health,
allocates financial and human resources to achieve the
organization’s goals and objectives, and implements appropriate
internal controls to protect the organization.
- Establishes administrative policies and procedures for IDF’s
operations and facilities. The CEO will be personally accessible
and invested in cultivating a positive culture aligned with the
mission of IDF to support its constituents.
- Identifies and uses outside contractors to effectively manage
resources and further the mission of the organization (such as,
legal counsel, information technology support, and public relations
candidate will be an innovative, forward-thinking, seasoned
executive with an outstanding record of accomplishment in leading
organizations of at least similar size and complexity and building
meaningful partnerships. The CEO will be capable of inspiring
internal and external stakeholders and advocating for the
importance of outreach and education to support the PI community.
Experience working in close collaboration with a diverse volunteer
Board of Trustees and staff is strongly desired. The ideal
candidate will possess the following qualities and experience.
IDF’s DIVERSITY STATEMENT
- Minimum of seven years’ experience in a senior leadership
capacity within an established organization.
- A bachelor’s degree required, advanced degree preferred with an
emphasis on health, public policy, communications and/or public
- Executive level experience in a nonprofit preferably in
- Transformational leadership style combined with concrete
- Ability to command the confidence and respect of
- Demonstrated high level of emotional intelligence and
intellectual curiosity and a desire to explore new ideas and
innovative approaches to solving problems, as well as servant
leadership qualities, working collaboratively with the President
and Board to advance IDF’s mission and strategy.
- Unimpeachable integrity, a long-term perspective, a strong
sense of accountability, a practical ability to get things done,
wisdom and good judgment, the flexibility and courage to shift
direction and experiment with new initiatives.
- A results-oriented leader with a strong business acumen who is
a good manager of assets – people, money, and time. Senior
leadership and management experience including strategic planning,
financial management, marketing, professional conferences,
programs, publications, and public policy.
- Track record building and leading a highly professional,
collaborative and motivated senior team in a performance driven and
results-oriented environment. Track record of attracting,
developing, and empowering staff.
- Experience leading change in a dynamic environment. The ability
to anticipate healthcare and education trends and developments and
identify opportunities for IDF, especially during a time of
- Outstanding communications and interpersonal skills including
the ability to relate well to a wide range of constituencies. The
CEO should be effective at clearly articulating the IDF’s message
and earning the respect of IDF's community.
- Skills necessary to work effectively with a broad range of
constituent groups such as public and private organizations;
federal and legislative policy and grant making bodies;
governmental systems, educational institutions, and foundations;
business/industry related to health care and education; other
volunteer associations and professional organizations; patient
groups; and the public.
- Passionate about helping and empowering people improve their
- Willingness to quickly become well-informed about primary
- Knowledge of social service systems, existing and emerging
health care settings, business practice areas, and education.
- Demonstrated experience of effectively supporting a volunteer
Board of Trustees.
- Ability to travel to domestic and international meetings, as
much as 30% of the time.
We are rare,
powerful, and inclusive. Like the stripes of a zebra, no two people
are the same. At IDF, we celebrate this uniqueness every day. An
inclusive, diverse, and fair workplace makes our community more
powerful. As a commitment to these values, IDF requires business
associates and vendors to have EEO and non-discrimination policies
in place as a condition of partnering with our
organization. The Immune Deficiency Foundation is proud to
be an equal opportunity employer.
POLICY ON PLACEMENT AND RECRUITMENT
Group and IDF are equal opportunity employers committed to the
principles of non-discrimination in the workplace. Candidates will
not be discriminated against on the basis of age, race, creed,
color, religion, sex, sexual orientation, national origin, gender
identity, transgender status, genetic information, disability,
marital status or any other characteristic that is prohibited by
federal, state, or local law.