Associate Director of Development

National Organization for Rare Disorders
Massachusetts, United States
Salary Commensurate with experience
Closing date
Oct 10, 2021

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Position Type
Fundraising, Corporate and Foundation Relations, Donor Relations, Grant Seeking, Prospect Research, Other Fundraising, Administrative, Sales and Marketing
Health, Research
Employment Type
Full Time

About NORD

The National Organization for Rare Disorders (NORD) is the leading independent nonprofit organization representing all patients and families affected by rare diseases. Come join our team and be part of the transformation and acceleration of research, and the development of evidence-based policy, care support and awareness campaigns to improve the lives of the 30 million Americans impacted by rare diseases. Follow NORD at and on Twitter at @RareDiseases.

Position Summary

The Associate Director of Development will work in close collaboration with the Vice President of Development and departmental colleagues to expand NORD’s funding sources and help to establish sustainable revenue opportunities. The Associate Director of Development is responsible for soliciting support for existing funding opportunities, establishing development and outreach processes for emerging initiatives, including NORD’s IAMRARE registry program and Centers of Excellence Network.

Essential Duties and Responsibilities

Independently develop direction and content for business development proposals and case for support with input from staff/SME’s as needed.

Aide in developing budgets and sponsorship levels for new opportunities as well as refreshing options to support existing funding channels. 

Liaise with program departments to identify new funding sources, including government and private foundation grant opportunities.

Follow up and vet new revenue opportunities with existing and potential organizations and grantors – ensure a continuous flow of business from client engagements.

Serve as a key point of contact for cross-departmental introductions, working to vet revenue opportunities and provide VP of Development with a recommended plan of action to move new prospects effectively through the sales cycle.

Set targets for assigned initiatives and develop appropriate dashboards and reporting tools to track performance. This includes (but is not limited to) status meetings/presentations with project stakeholders and management.

Manage the sales process for assigned initiatives and maintain records in Salesforce. 

Perform other duties and functions as assigned.


A bachelor’s degree is required.

Minimum of 5-7 years of business development experience..

Experience in a mission-driven environment or healthcare-related field

Knowledge, Skills and Abilities

High energy and passion for NORD's mission is essential.

Exemplary business development skills and broad knowledge of the pharmaceutical industry and drug development process.

Excellent communication skills, both written and oral; ability to influence and engage a wide range of donors and build long-term relationships.

Strong organizational and time management skills with exceptional attention to detail.

A professional and resourceful style; the ability to take initiative, and to manage multiple tasks and projects at a time.

Ability to work both independently without close oversight, but also a team player who will productively engage with others at varying levels of seniority within and outside NORD.

Ability to travel to meet with stakeholders, donors, etc.

Excellent technological abilities including knowledge of Microsoft Office and Salesforce.

Proven track record developing in-depth and long-standing relationships with organizations, especially at a senior level.

Ability to communicate with a variety of clientele and audiences such as patients, families, executive directors, government officials, researchers and medical professionals.

Working Conditions

Essential functions are typically performed in an office setting with a low level of noise.  Reasonable accommodations may be made to enable individuals with disabilities to perform the essential functions.

NORD is an equal opportunity employer. All applicants will be considered for employment without attention to race, color, religion, sex, sexual orientation, gender identity, national origin, veteran or disability status.

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