The National Organization for Rare Disorders (NORD) is the
leading independent nonprofit organization representing all
patients and families affected by rare diseases. Come join our team
and be part of the transformation and acceleration of research, and
the development of evidence-based policy, care support and
awareness campaigns to improve the lives of the 30 million
Americans impacted by rare diseases. Follow NORD at
www.rarediseases.org/ and on Twitter at @RareDiseases.
The Associate Director of Development will work in close
collaboration with the Vice President of Development and
departmental colleagues to expand NORD’s funding sources and help
to establish sustainable revenue opportunities. The Associate
Director of Development is responsible for soliciting support for
existing funding opportunities, establishing development and
outreach processes for emerging initiatives, including NORD’s
IAMRARE registry program and Centers of Excellence Network.
Essential Duties and Responsibilities
Independently develop direction and content for business
development proposals and case for support with input from
staff/SME’s as needed.
Aide in developing budgets and sponsorship levels for new
opportunities as well as refreshing options to support existing
Liaise with program departments to identify new funding sources,
including government and private foundation grant
Follow up and vet new revenue opportunities with existing and
potential organizations and grantors – ensure a continuous flow of
business from client engagements.
Serve as a key point of contact for cross-departmental
introductions, working to vet revenue opportunities and provide VP
of Development with a recommended plan of action to move new
prospects effectively through the sales cycle.
Set targets for assigned initiatives and develop appropriate
dashboards and reporting tools to track performance. This includes
(but is not limited to) status meetings/presentations with project
stakeholders and management.
Manage the sales process for assigned initiatives and maintain
records in Salesforce.
Perform other duties and functions as assigned.
A bachelor’s degree is required.
Minimum of 5-7 years of business development experience..
Experience in a mission-driven environment or healthcare-related
Knowledge, Skills and Abilities
High energy and passion for NORD's mission is essential.
Exemplary business development skills and broad knowledge of the
pharmaceutical industry and drug development process.
Excellent communication skills, both written and oral; ability
to influence and engage a wide range of donors and build long-term
Strong organizational and time management skills with
exceptional attention to detail.
A professional and resourceful style; the ability to take
initiative, and to manage multiple tasks and projects at a
Ability to work both independently without close oversight, but
also a team player who will productively engage with others at
varying levels of seniority within and outside NORD.
Ability to travel to meet with stakeholders, donors, etc.
Excellent technological abilities including knowledge of
Microsoft Office and Salesforce.
Proven track record developing in-depth and long-standing
relationships with organizations, especially at a senior level.
Ability to communicate with a variety of clientele and audiences
such as patients, families, executive directors, government
officials, researchers and medical professionals.
Essential functions are typically performed in an office setting
with a low level of noise. Reasonable accommodations may be
made to enable individuals with disabilities to perform the
NORD is an equal opportunity employer. All applicants
will be considered for employment without attention to
race, color, religion, sex, sexual orientation, gender identity,
national origin, veteran or disability status.