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Executive Director - Disease-specific, Health Nonprofit (Flex)

Team Phenomenal Hope
Wisconsin, United States
Salary Commensurate with experience
Closing date
Jul 28, 2022

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Position Type
Executive, Fundraising, Corporate and Foundation Relations, Donor Relations, Fundraising Administration, Grant Seeking, Major Gifts, Planned Giving, Prospect Research, Other Fundraising, Special Events, Programs, Community Outreach, Grant Administration, Grant Making, Managing Volunteers, Administrative, Accounting and Finance, Office Administration, Public Relations and Communications
Advocacy, Education, Health, Research
Employment Type
Full Time
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Remote, hybrid, flexible: work from anywhere in the US.

This disease specific, non-profit organization, (501(c)3), was established to support patient
advocacy, increased awareness, and, funding for education and research.  The organization has experienced consistent growth both in funding and established supporters at all levels from
individual to corporate.  It now needs to take the efforts to the next level with an experienced
executive director. The executive director, will have full P&L responsibilities and will work with
a small staff (distributed), of full and part-time personnel and, a volunteer Board of Directors to oversee all aspects of the organization’s activities.  

Responsibilities To Include


Fund Development 
Fundraising is one of the most important responsibilities for the executive director. He/She will
oversee an experienced development professional with experience raising funds in the health
care space. The Board looks to the executive director to establish a strong, sustainable
fundraising program that will expand our current corporate support while soliciting giving from
individual donors and other private sources of philanthropy, including foundations. 

The executive director will ensure the following through his/her staff and volunteers: 

  • develop fundraising materials (personalized appeals and funding proposals) 
  • cultivate major gifts 
  • Coordinate or conduct fundraising special events as appropriate 
  • support volunteers in their development of special events 
  • be responsible for accurate, timely acknowledgement and receipting of gifts 
  • engage new and existing donors through electronic communication 
  • develop and maintain current, accurate donor database 
  • provide timely reports from database as requested by Board of Directors 

Marketing and Outreach  
Raising the profile of the non-profit’s mission, is another essential activity of the executive
director. With support from a creative team of external consultants, the non-profit maintains a
robust web site and well-developed social media platforms.   

The staff and creative consultants to: 

  • ensure current, accurate content on the website 
  • develop creative, timely messages for Facebook, Twitter, Instagram, and other 
  • develop strategies to increase participation in non-profit activities and affiliated programs 
  • participate in community events as appropriate (health fairs for example) 
  • engage regional, national and international media as appropriate 


Administrative duties will primarily focus on providing staff leadership as well as all aspects of
reporting and working with the Board of Directors. The Board Treasurer will check financials
and work with the executive director to create budgets and projections for coming year.  

Examples of executive director administrative duties include: 

  • Support and improve the processes in place to maintain accurate financial records using software-based accounting program that follow generally accepted accounting principles 
  • Be able to understand and present the financial information to the Board, including budget variances. 
  • Ensure that the non-profit is compliant with all state and federal financial reporting requirements 
  • Ensure that all invoices are paid in a timely manner. Identify and acquire office and other materials needed for support of the non-profit mission 
  • Capable of effectively supervising support staff and have a basic understanding of human resource management. 
  • Exercise good judgment on independent decision making, when to request guidance, and devise a method of efficient and regular communication to the Board.   
  • Provide other administrative support to the Board of Directors as needed 

Volunteer Management and Event Planning 
The executive director provides leadership, mentoring and direction for staff and volunteers
who wish to support the non-profit’s mission through fundraising activities. This includes  the
organization of special events.  

Such organizational activities may include: 

  • Soliciting volunteers to host special events 
  • Creative planning for community engagement events 
  • Locating a site to host an event 
  • Organizing catering and other needs specific to the event 
  • Issuing invitations and organizing guests 
  • Working with consultants to advertise the event 

Personal Qualities: 
Enthusiasm, creative thinking, strong communication and organizational skills are the personal
qualities most needed to succeed in this job. Because of the limited number of current
employees, the executive director must also be someone who can work alone much of the
time, and be a self-starter.   

Other important qualities include: 

  • Efficient, analytic, and strong attention to detail 
  • Demonstrated willingness to do “whatever it takes” to get the job done 
  • Flexible and innovative 
  • Leadership 
  • Collaboration 


  • Bachelor’s degree  
  • Three years’ or more experience in fundraising and/or marketing for a non-profit organization with strong donor cultivation skillsets. The successful candidate will be an "expert" in at least two or more of the classic development activities: major gifts, special events, direct appeals, planned giving, corporate solicitation and grant writing. 
  • Proficiency in Microsoft Office, including Outlook and Word 
  • Proven experience with social media marketing highly desirable  
  • Experience using Raiser’s Edge or similar donor database management system 
  • Experience with numerous fundraising strategies 
  • Strong oral and written communication skills, including presentation skills 
  • Ability to recruit, manage and work with volunteers 
  • Understanding of the challenges faced by volunteers, while remaining focused on the goals for program delivery 
  • Available to work a flexible schedule to meet with volunteers or donors on occasional evenings or weekends if necessary 

SUPERVISES: Small full-time professional staff, part-time staff, volunteers & consultants. Work
is expected to be conducted in a distributed manner. 

REPORTS TO: Chairman of the Board 

COMPENSATION: Commensurate with experience.  
Resumes will be accepted until the position is filled.  

This 501(c)3 non-profit is proud to be an equal opportunity employer.

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