Reporting to the Executive Director, the Philanthropy Director
will have one direct report, a Development Officer, to be hired by
the new Philanthropy Director. The successful Philanthropy Director
- Create and execute a diversified and sustainable development
strategy emphasizing annual giving, major gifts, FA community
fundraising, corporate support, and planned giving.
- Hold primary responsibility for creating, managing, and
expanding the development program. This includes managing the
current and future fundraising staff members.
- Establish systems for prospecting, evaluating pipeline
strength, and building out strategies to reach new donor
- Evaluate and strategize opportunities for corporate
partnerships, and help build relationships as FARF expands efforts
to engage with pharmaceutical companies and other sectors. Interact
with high-level donors and maintain a high level of
professionalism, discretion, and confidentiality.
- Develop and maintain a positive relationship with the FARF
staff, Board of Directors, Scientific Advisory Board, FA Adult
Council, and FA families, nurturing an environment of teamwork,
excellence, and shared success.
- Collaborate with the Community Relations Director to develop a
donor-centered communications plan. This includes creating
persuasive verbal and written communications to increase awareness,
support critical programs and projects, and effectively match the
interest of donors with FARF's needs.
- Collaborate with the Scientific Director to understand funding
needs and be able to communicate scientific impact to donors.
Collaborate with the Executive Director to expand FARF’s
international reach. Engage key leaders and FA communities to
establish and support fundraising efforts with a long-term goal of
increasing the global donor base.
- Oversee donor tracking and donor recognition.
- Oversee and expand a sustainable annual giving program.