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Philanthropy Director

Reporting to the Executive Director, the Philanthropy Director will have one direct report, a Development Officer, to be hired by the new Philanthropy Director. The successful Philanthropy Director will:

  • Create and execute a diversified and sustainable development strategy emphasizing annual giving, major gifts, FA community fundraising, corporate support, and planned giving.
  • Hold primary responsibility for creating, managing, and expanding the development program. This includes managing the current and future fundraising staff members.
  • Establish systems for prospecting, evaluating pipeline strength, and building out strategies to reach new donor audiences.
  • Evaluate and strategize opportunities for corporate partnerships, and help build relationships as FARF expands efforts to engage with pharmaceutical companies and other sectors. Interact with high-level donors and maintain a high level of professionalism, discretion, and confidentiality.
  • Develop and maintain a positive relationship with the FARF staff, Board of Directors, Scientific Advisory Board, FA Adult Council, and FA families, nurturing an environment of teamwork, excellence, and shared success.
  • Collaborate with the Community Relations Director to develop a donor-centered communications plan. This includes creating persuasive verbal and written communications to increase awareness, support critical programs and projects, and effectively match the interest of donors with FARF's needs.
  • Collaborate with the Scientific Director to understand funding needs and be able to communicate scientific impact to donors. Collaborate with the Executive Director to expand FARF’s international reach. Engage key leaders and FA communities to establish and support fundraising efforts with a long-term goal of increasing the global donor base.
  • Oversee donor tracking and donor recognition.
  • Oversee and expand a sustainable annual giving program.

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