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President/Chief Executive Officer, National Eczema Association

Employer
National Eczema Association
Location
California, United States
Salary
$275,000.00 - $325,000.00
Closing date
May 4, 2024

View more

Position Type
Executive
Fields
Advocacy, Health
Employment Type
Full Time

The National Eczema Association is the driving force for an eczema community fueled by knowledge, strengthened through collective action, and propelled by the promise for a better future.

 

ORGANIZATION DESCRIPTION

Founded in 1988, the National Eczema Association (NEA) is a 501(c)(3) nonprofit and the largest patient advocacy organization serving the 31 million Americans who live with eczema and those who care for them. NEA provides programs and resources to elevate the diverse lived experience of eczema and helps patients and caregivers understand their disease, actively engage in their care, find strength in one another, and improve their lives. Additionally, NEA advances critical eczema research and partners with key stakeholders to ensure the patient voice is represented and valued in education, care, and treatment decision making. The eczema community is at an exciting juncture, with increased recognition of the seriousness and burden of eczema and a surge in scientific interest and development of new treatments. Bolstered by NEA’s strategic plan, Blueprint 2025, NEA is a driving force toward the ultimate vision: a world without eczema.

Garnering significant support and recognition, NEA has:

  • Launched the successful and growing Seal of AcceptanceTM program, empowering patients to find personal care and household products suitable for eczema and sensitive skin.
  • Invested $4 million in research grants, supporting more than 80 funded studies, 48 research institutions, and 72 grant awardees.
  • Advocated at the state and federal levels for improved policies related to step therapy, out-of-pocket costs, and medical switching, including successful inclusion of eczema in the Department of Defense Peer-Reviewed Medical Research Program.
  • Launched the award-winning EczemaWise – a free eczema tracker app to help patients and caregivers manage their eczema.
  • Created the thriving and impactful NEA Ambassadors program, ensuring that the patient voice and expertise are at the table where and when decisions about their care are being made.
  • Received a four-year Chronic Disease Awareness and Engagement grant from the Centers for Disease Control and Prevention.
  • Transformed Eczema Expo into the can’t-miss annual gathering of the eczema community including patients, caregivers, healthcare providers, and partners.

Since 2017, NEA has more than doubled its revenue to a projected $7.8 million in 2023 and tripled its local staff to 30 living throughout the United States. They are highly committed to NEA’s mission and community and enjoy a positive and collaborative work culture. As one staff member put it, “Whether you are staff, a patient, a family member, an Ambassador, or an industry partner, at NEA you are human first.”

Learn more at NationalEczema.org.

 

JOB SUMMARY

Selected by, reporting to, and working closely with the Board of Directors, the President/Chief Executive Officer (CEO) will provide the leadership, vision, and strategic direction necessary to advance NEA, its staff, and the community it serves to the next level. They will: manage day-to-day operations and activities; supervise a dedicated, empathetic, and productive staff; and be the visionary, inspirational, and compassionate face of NEA.

A key responsibility for the new CEO will be to lead development of the next strategic plan. They will have primary oversight for: developing and implementing strategies that result in increased visibility; new and more diverse sources of funds; significantly increasing the number of donors and dollars raised; expanding NEA’s patient-centric advocacy capabilities; and growing NEA exponentially. The CEO will also steward and expand NEA’s partnerships in the pharmaceutical and medical communities.

The CEO focuses on long-range goals, growth, strategies, plans, and policies, routinely exercising discretion and independent judgment in the performance of their job duties. With NEA’s leadership team, this person will champion and enhance, as appropriate, initiatives related to NEA’s three Pillars of programmatic focus for meeting the needs and leveraging opportunities for all those affected by eczema: Community, Knowledge, Collective Action.

 

IDEAL CANDIDATE

  • An innovative leader who has exceptional character and self-awareness and who acts with integrity and empathy; a dedicated advocate for people with eczema and their loved ones.
  • Approachable with outstanding communication and interpersonal skills including the ability to communicate with a broad range of audiences both internal and external in a clear, concise, persuasive, and confident manner; outgoing, charismatic, straightforward, and self-possessed; one who welcomes new ideas, shares information readily, is an active listener, and respects what others bring to the table; someone able to engage internal and external individuals of diverse backgrounds at all levels in a variety of social and business settings.
  • Effective, with the breadth of capabilities to lead and steward both internal strategic work and external relationships; patient yet decisive; intuitive and inclusive, with the organizational sensitivity to gain the support and confidence of others.
  • A strategic leader with the discipline and persistence to support a strong, energized team environment based on trust; someone who invites diverse viewpoints.
  • A consensus builder with a high energy level who is able to foster a sense of common purpose throughout a geographically dispersed staff, board, and community.
  • Someone who manages with business intelligence, is analytical, and possesses a balance of practical and reality-based experience.
  • Someone with a deep commitment to shared leadership and to a collaborative and transparent approach in the management of the organization.

 

KEY RESPONSIBILITIES

Leadership and Organization Management

  • Provide thoughtful and visionary leadership that is transparent and empowering in a manner that supports and guides the organization’s mission.
  • Present strategies and plans for organizational impact, garnering Board approval and support as needed. Contribute to the strategic plan and drive its implementation.
  • Establish goals, objectives, and operational plans in collaboration with the Board of Directors and leadership team.
  • Apply innovative thinking and performance measurements to analyze and support strategic decision making.
  • Oversee NEA’s day-to-day operations and ensure its overall success; lead, positively motivate, and inspire a committed staff; understand their strengths and concerns and encourage their professional growth; delegate authority appropriately.
  • Foster the collegial working environment that will enable the staff to continue to function productively and effectively as a whole in a culture committed to the remote work environment.
  • Organize, motivate, and mentor internal team leaders to strategically and effectively grow NEA’s impact, programs, and fundraising.
  • Continually foster a culture that encourages communication and collaboration between departments and recognizes positive contributions.
  • Inspire a strategic, professional, results-driven environment across the organization.

 Development and Fundraising

  • Drive development and fundraising in collaboration with team leaders and leveraging the Board of Directors.
  • Initiate, cultivate, steward, and extend relationships with the organization’s donors and supporters.

Financial Management and Administration

  • Provide strategic leadership and hands-on management for all administrative and operational functions of the organization in accordance with the mission, objectives, and policies.
  • Assume responsibility and accountability for the fiscal integrity, stability, and sustainability of the organization by prudently directing resources and maintaining healthy cash flow, adequate reserves, and robust fundraising.
  • Build, administer, and monitor Board-approved budgets; ensure maximum utilization of resources and optimum financial positioning for the organization.

Governance

  • Build strong relationships with the entire Board, providing leadership and support to members, communicating effectively, and providing them with the information necessary to function with best practices and to make informed decisions in a timely and accurate manner.
  • Prepare for and attend all Board meetings, providing regular reports and updates to ensure that Board governance and fiduciary responsibilities are met.
  • Effectively interact with the Board as needed to build consensus and support for CEO initiatives.
  • Implement Board policies and procedures.
  • Work closely and openly with the Board and its committees, ensuring ongoing communication of risks and challenges as well as opportunities and successes.

External Relations and Communications

  • Working closely with senior leadership, oversee all internal and external communications for NEA including all aspects of the organization’s marketing and public relations; ensure that the organization and its mission, programs, and services are consistently presented in a strong, positive image; cultivate and nurture relationships with the media; expand NEA’s use of communications tools to reach the wide diversity of current and prospective community members and partners.
  • Cultivate relationships with the broad base of NEA supporters including patients and their families, health professionals and other caregivers, Ambassadors and other volunteers, advocates, donors, corporate funders, and scientific research program grantees.
  • Represent the organization and serve as chief spokesperson publicly at events, conferences, and partnership meetings.
  • Present and promote the organization and its mission, programs, and partners in a consistently positive manner.
  • Ensure high visibility to prospects and the public and build interest in engaged philanthropy.

 

IDEAL EXPERIENCE

The CEO should have proven experience taking an organization from one level to the next, shepherding it through the challenges and leveraging the opportunities that come with exponential growth. They should have the following experience and qualifications.

  • Personal or professional familiarity with and/or an ability to quickly gain an understanding about the eczema ecosystem, especially eczema research and treatment, and how NEA can best fulfill its mission and goals.
  • Seasoned business acumen with at least 10 years of broad-based leadership and management experience in the for-profit, public, or not-for-profit sector, ideally within a health-related field; proven strategic planning, managerial problem-solving, resource development, and financial management abilities; experience growing an organization significantly in both revenue and scope; experience with major donors.
  • Ability to work collaboratively with a board of diverse backgrounds, personalities, and accomplishments.
  • A proven record of success leading a staff of similar size and building consensus for strategic plans and executive decisions; ability to recruit and retain talent on both the staff and the Board; success as a creative, thoughtful, and resourceful risk taker with knowledge of when to move forward and when to hold back.
  • Experience with a thought-leader organization or taking one to that level, even as the external organizational ecosystem advances and shifts.
  • A successful track record in fundraising, with a demonstrated ability to attract financial resources from corporations and individuals; the ability to personally interact with and cultivate donors; knowledge of the philanthropic community is a plus.
  • Excellent public speaking skills for both formal and extemporaneous presentations; experience working with the media is a plus.

 

COMPENSATION

The salary range for this position is $275,000 to $325,000, and NEA offers an attractive benefits package.

 

The National Eczema Association is an equal opportunity employer. All qualified applicants will receive consideration for employment without regard to race, color, religion, national origin, age, sex, pregnancy (including childbirth or related medical conditions), sexual orientation, gender identity or expression, disability, genetic information, military or veteran status, citizenship, or any other characteristic protected by applicable federal, state, or local law.

 

Applications, including cover letters and resumes, or nominations should be sent to G. Angela Henry and Mark Tarnacki at NEA@PhillipsOppenheim.com.

 

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